Friday, June 09, 2006

DICKOY

Juan "Dickoy" Magdaraog

I've been told there are two ways of looking at things. Is the glass half-empty or half-full? I'm usually guilty of the former until a guy named Dickoy showed me that even if the glass is broken, it's just, well, glass.

Dickoy told me he read my earlier article entitled, "Conquering Everest." He asked why I had reservations about some climbers attempting to summit the world's highest peak. Why I kept toying around with the question, if a climber doesn't make it to the top of Everest, would he have died in vain?

All of a sudden the feelings I had been keeping about the "whole Everest thing" came out like a bitter pill. I reasoned out that it's practically a suicide attempt, that the climbers are selfish. Why would you risk depriving your wife a husband or your child a father? Rant rant rant. After I finished, he paused and smiled, "What if the climber makes it?"

I looked at him and all of a sudden I felt so small and embarassed. This was the response of a guy who is bound to a wheelchair, who needs a bi-pap breathing machine 24/7 because his respiratory muscles are weak, who was told by medical experts that he will not make it beyond the age of thirty. Dickoy is turning twenty nine in November -- but why did it seem like I had bigger problems in life? Shame, shame on me.

Dickoy's real name is Juan Magdaraog. He lived a normal, active life until tragedy struck when he was just 10 years old. At first, he was mis-diagnosed with another type of muscular disease. It was when he turned 15 that doctors finally concluded he had a rare disorder called Pompe's disease, a degenerative disease that caused his muscles to weaken and slowly waste away. The muscles most often affected are those used for breathing and for moving around. Fewer than 10,000 people in the world have Pompe and Dickoy is only one of two known Pompe patients in the Philippines.

I asked him at what point in his life he was able to accept his disease? Dickoy told me it didn't happen overnight. Since Pompe's disease is gradual, his acceptance of it was also gradual. It wasn't until he was older and wiser did he realize that "you just have to learn to live with the things that are given to you and make the most out of it."

I first met Dickoy thru a reunion with old friends just over a month ago. He was supposed to join our dinner out in Makati but wasn't able to make it. My friends decided to pay him a surprise visit so off we went to his condo in Greenhills at one in the morning. I was told he suffered from a rare form of disease. When I saw him I immediately noticed the plastic tube across his face and the bi-pap breathing machine beside him. He talked with a bit of difficulty but he never showed us it bothered him. In fact, when you start talking to Dickoy, the breathing device, the sickness becomes invisible and you begin to see the person.

The person I'm talking about is a smart, friendly, accomplished guy who happens to have Pompe. Despite his sickness, he continues to live a productive life. He is a web designer and is the Creative Director of Sparkplug Studios, a company he describes as a small start-up which he runs with his brother and some friends. He also writes regularly for the IT magazine, MPH. Dickoy is also an active member of Singles for Christ. In his blog, www.fightpompe.com, he wrote that he loves two things in this world with a passion, Apple computers and Ferrari. Aside from his everyday musings, the blog, of course primarily chronicles his fight with Pompe's disease.

Last December, Dickoy was lucky to be chosen as a "test case" to receive Enzyme Replacement Theraphy using the drug Myozyme which was recently approved by the Food and Drug Administration in the U.S. The changes aren't dramatic he said but he feels better and stronger now that he is getting the treatment twice a month. Though just like any test, it is still subject to a lot of risks and uncertainties but knowing Dickoy, he will always look at the brighter side, "Sure what happened to me is bad, but really when you look at my life, there are still more good than bad."

Now that I have written lengthily about Dickoy, you might ask, why is an entertainment reporter like me writing about a non-celebrity? Well, because in my own little way, I really hope for Dickoy to reach celebrity-status, as well as the Pinoy mountaineers who made it to the top of Mt. Everest and made our country proud. There are many, many more individuals who deserve all the attention.

I still remember my interview with Bishop Socrates Villegas, who was then the secretary of Cardinal Sin. He published a book and I went to cover his book launch and asked him how he felt about his celebrity-status. His answer made quite an impact on me. "We don't need celebrities, we need heroes." Of course he wasn't talking about Superman, Panday or Captain Barbell but real-life heroes, celebrity or not, who can truly inspire and use their God-given gifts to make a difference in this world. (This article was published in The Philippine Star, 6/9/06)

16 comments:

jayvee said...

dicks pointed me to this article yesterday. a very heartwarming piece :)

cheers nina!

kim02 of PEX said...

Ei, I love this entry!

As Dickoy stated, let us all make the most out of what we have. We may never have everything that we want, but we can try to have everything out of what we have can offer. If there's one important lesson that we need to learn in life, that is to be happy, not by getting what we want, but by being satisfied with what we have.

Thanks, Nina. This article is very inspiring... This just brightened my gloomy morning. :)

Detlef Grindel said...
This comment has been removed by a blog administrator.
Jeevan said...

Hi Nina, came though Juan Blog. It Nice interview, u r making happy smile on a nice human.

Benedict Bueno said...

I hope to keep my promise to hangout with Dickoy aka Chairman when I am in Manila..

jayvee said...

longbeard, is that you? :D

sangre ako said...

what an inspiring entry you got there.

we should be like Dickoy - always looking at the brighter side of things.

gwapo_na_baktin said...

niƱa, turn on mo yong word verification para maka-iwas sa spam.

nice entry by the way. kahit magulo ang bansa natin, dikoy reminds me that once in a while, heroes emerge, miracles happen and life amazingly makes sense.

concon said...

very inspiring article.
may God bless you and Dickoy.

stacey_tee said...

Dickoy rocks!

http://360.yahoo.com/chinese_israelite

Berniej said...

I count myself lucky for personally knowing a person like "Chairman" (Dickoy's handle at philmug.ph). He is a real inspiration to me and my family.

ForzaMillan said...

Saw your feature on Dickoy on tv last night. These words in your blog, more than enough to send the right message, were made even more alive with the images from the feature. He said he has received good things. He sees truly that even his condition is a gift around which he must build his life. He and you have taught us a lot.

May Ann Licudine said...

Hello nina!

I watched TV Patrol about Dickoy. I heard from Dickoy about you. Thank you very much for featuring him about his life, etc. Your article is beautifully inspiring!

I adore him because he's a wonderful amazing brave inspiring friendly guy! I'm blessed that he became my nice friend! I hope I may have time to meet him personally. Let us continue to pray for him faithfully.

cheers nina!

gentletouchee said...

To Dickoy:

Where's your father's province?your surname is my grandpa's middlename.

Benedict Bueno said...

At 8:34 PM, jayvee said…

longbeard, is that you? :D


Yes its me

Benedict Bueno said...

At 8:34 PM, jayvee said…

longbeard, is that you? :D


Yes its me